For the Love of Our Children – True Stories of Hope and Healing visionary and co-author, Rose-Anne Partridge, is teaming up with Project 8p to help raise funds for families to attend their annual conference in Colorado, USA.
Meet Johan
Meet Johan, 21 years old, who still smiles despite a condition so rare most people have never heard of it before. Chromosome 8p Inverted Duplication.
His mother, visionary and co-author of For the Love of Our Children, Rose-Anne Partridge, who cares for him full-time in Ontario, Canada said it has not been an easy journey for her son but he is ‘always smiling’. ‘He’s a wonderful, gentle soul but it’s not always easy for children like him because even though he enjoys interacting with other people sometimes they feel very awkward with him or misunderstand what it means to be non-verbal. Even though Johan cannot put his thoughts into vocalized words, he comprehends and is very good at responding with various gestures and even a bit of sign language.’
‘He can’t dress himself or do a lot of things we take for granted. And it’s things like not having friends to play with, or ever having been invited to a birthday party that brings a bit of sadness to Rose-Anne; things that every other child typically experiences as they grow up. And now with severe scholiosis, his mobility is very restricted.
Unfortunately, there’s not enough money in it to make it worth researching such a rare disorder.’ And for most of Johan’s life this medical condition which is so rare that it has no “special” name had no support groups to turn to — at least until Rose-Anne discovered Project 8p and other similar groups on FaceBook. Project 8p is committed to maximizing every opportunity and resource, which is why Rose-Anne wanted to combine her publishing efforts with helping to raise funds for this cause.
The Book
Many parents will agree that navigating the roads of parenthood is a challenging task, even at the best of times. However, when you have a child with special needs, the list of considerations and tasks only grows. It begins by learning about the special needs of the child, researching further, locating and accessing effective treatments and resources that conventional parenting doesn’t require. And imperatively, coping with the emotional and physical demands of caring for an individual with special needs.
Buy the Book and Support the Cause
For every book sold, $5 will go toward helping to create a path to treatment for neurological chromosomal disorders by funding research and a standard of care.
For the Love of Our Children – True Stories of Hope and Healing
Going beyond a how-to book, For the Love of Our Children takes the stories and perspectives of 15 families who are all navigating similar paths in their own unique way, creating a profound and relatable roadmap to help our special children live to their fullest potential. Their stories will leave you crying, nodding with understanding, and cultivating gratitude for your own story. Most importantly, this book will be a reminder that you are not alone in your journey.
CLICK HERE TO BUY NOW! $24.95 plus shipping
International Family Conference July 7th – 9th, 2021
This year they will be offering a Live and Virtual Conference Ticket to live stream the conference right into our families’ own homes!
Click here to learn more and register for the event.
Project 8p
Project 8p Foundation is a 501(c)(3) nonprofit organization that is researching 8p disorders to find treatment options and give meaningful answers to those affected and their families. We are patient-led. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.
We are living in the age of scientific discovery. With a strong network of companies and organizations around the world that are partnering together, rare diseases are being diagnoses and therapies are being developed to improve and save lives. While there are many obstacles to overcome, there is astonishing progress with repurposing of existing drugs, new drugs, and cutting-edge gene and cell therapy that is happening at a faster pace than imagined by the scientific and pharmaceutical community.
Project 8p is an active member of this community and aims to help everyone that is impacted by chromosome 8p to achieve their goals on their own unique journey. Project 8p is committed to maximizing every opportunity and resource.
Testimonials
We are so grateful for all the parents who have purchased a copy of our book already. Hundreds of copies of this book is in the hands of those who are on a similar journey. And the main comment I hear from them all is, “This was so needed! It makes me feel so comforted knowing others can relate to what we are experiencing with our child.”
Absolutely loved this book! Saw myself in many of the words and emotions expressed. Thanks for publishing. It takes a village. Sharing your darkest times may inspire others to get through theirs. These are what got me through the tough times over the years and inspire me to share our story. So proud of Susan Baker (co-author) as she highlights her family’s struggles and triumphs in ‘For the Love of our Children.’ I laughed and cried and saw myself in her words. This is what keeps me moving forward.
Lori Preshing, Ontario, Canada
About the author
Rose-Anne Partridge is a graduate of the University of Toronto and has been an entrepreneur for over 25 years. During that time, she became a mother to three beautiful children, however, her second-born son was born with a rare chromosomal disorder which led Rose-Anne down a path of research into holistic alternatives for his well-being.
Rose-Anne is a published, best-selling author, former radio show host and iTV personality. Her most recent work includes being the visionary and co-author of For the Love of Our Children – True Stories of Hope and Healing, working with families who have children with special needs and sharing their unique journeys. Previously she also co-authored The Power of Women United, sharing the challenges she faced with lack of confidence. After her son was born with a rare genetic condition, she went on to become an advocate and wellness coach for special needs and eventually founded Real Life Changes, Families for HOPE Network, and Oily Masters. She has also created a guide on how to use Young Living essential oils and related products to help our special children live to their fullest potential.
Contact us
If you would like to contact Rose-Anne Partridge, or you would like to order more than one copy of the book, please fill out the form and we’ll get back to you as soon as possible.
Otherwise, you can visit the main web site at www.FortheLoveofOurChildren.com